Rants and Musings

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I've written half a dozen entries today. My brain is in/on some sort of hyper-speed mode.

I'd have posted them here, but... well... tblog is still BROKEN.

I have other places to write, on and off line, but I've been doing it here for so long now...

I dunno. This is a "ME" place... a "ME" place with A LOT of ears. It's tough to walk away from. (Obviously!!!)

...or maybe it's just habit.

Happy Flaraversary

I once referred to this date, the 27th of June, as my "spiritual birthday." After that, I started calling it my "Awakening."

Now, it's all about the MS... and knowing that what happened on that date in 1983 was basically, my brain popping to the point of my first really noticing.

I wish that I could go back to a past frame of mind. I wish that I could just pretend that I didn't have MS, that my brain is just more evolved than most other people's brains are, that I'm just more aware. Feeling superior feels so much healthier than feeling... broken.

Retro Writing 062394

6/23/94 

What is this hole, this emptiness that fills me. Is it the wall again? The weight of it wearing me out? What happens when I finally break? Will I survive? - I mean, the me I am now. How will I finally end up? Locked away? Jail? Asylum? It's so close. I'm scared, but I can't stop it. I can't hold it together anymore. Oh so tired. We're all so fucking tired.

Summer

I'm tired. I should be in bed, sleeping, but I don't feel like I can manage to. I tried, but it's not happening.

I should be able to write, but I don't feel like I can manage to.

I tried,

but it's not happening.

YOU know where to find ME.

I've been having a lot of trouble with my vision. On top of that, I (stupidly) spent a little too much time at MyShpace yesterday, and all the flashing ads were simply too much. Like camera flashes and strobe lights, they basically push my brain into seizureville. I stopped in again this morning, and the same thing started happening. Even now, my eyes still feel like they're shaking... twitching.

I don't want to lose the Internet. It's the only social outlet I have, really. It's my only way to connect with the outside world. More and more though, it seems that my brain can't handle it because of all the flashing. It's rare that I ever turn my sound on for the same reason. It's just too much. Even this cursor flashing at me hurts.

Bit by bit, everything which was once keeping me going had to go, or was taken away. I don't have much left!

I'm tired of apologizing. I tired of explaining myself. I'm tired of trying to make up for what I feel I am lacking.

I have to let go... on many, many levels. If I don't, it's all going to pull me under, and I'm going to drown.

SirThinksalot is getting pissed. I have to start listening to him, or he'll make it so that I can't.

Dr. Jon

I kept on thinking about blogging last night, and every time I did I felt sick to my stomach.

There's not much of anything that I'm getting out of this place which I cannot get elsewhere. Yeah, all my archives are here. I have them stored other places though, online and off. Besides, there's too much for anyone to read through in less than a damn week. Used to be that you could, at least, make it read from the oldest to the most recent entry, rather than making people read all your archives from bottom to top.

People can't even sign up for accounts in order to comment anymore.

I've been writing online for more than 8 years now. The only real break in time (about 2 months) was when I was out in Montana, and even then I was writing offline. That's like... a doctorate or something. Right?

He's roasting something up there.

It feels more like it should be 3AM than getting close to 9PM. This whole day has felt completely abstract. Wrong, yet not.

I need some good sleep. Not that I haven't been getting any at all, but I need something more substantial than I've been getting. It's not good for me not to get enough sleep. Very, very bad things happen when I don't get enough sleep. It is a need. It is a want as well, but needs are more important than wants.

I want sleep, but I do not want to take a pill. I need sleep, but I do not need to feel suicidal because of taking a pill. The solution? Don't take a pill and risk very, very bad things happening because of not getting enough sleep.

Whatever is going on, I hope it passes quickly. I simply do not have it in me to make it through a major insomnia spell. Not again. Never again.

limbo

Yesterday was a pretty awful day. I suppose it was mostly psychological or chemical stuff, just depression, but that doesn't make a difference. Depression can be just as debilitating as anything else.

All I can do is hope that today will be a better day. It's like a morning ritual, the whole "hope" thing. I have to watch how high I set the bar though. Getting my hopes up... yeah... there's nothing which can send me back into depression more idiotic.

I know better.

it's a wonder

Had some trouble today. Like I said, things haven't been going all too well with me. I had to go to the food store though, and it wasn't the most pleasant experience. RavensWings is bending herself in eighths in order to help me, and that help is not in the least taken for granted, but I sure do wish I didn't need the help so much. I'm not walking well, I'm not standing well, I'm not thinking well, I had the rather terrifying experience of my right eyeball shaking insanely the other day... looked like an earthquake when I opened my eye... the pain... yeah... the fucking pain... etc., etc.

I have food... good food. This is a very good thing. I've been struggling with having an appetite, but at least now, if I'm (by good chance) hungry, I'll have something to eat. Between not being able to cook anymore, having only about 5 hours of actual help a week (including any substantial face to face conversation), and being so damn food sensitive (in all the wrong ways,) it's tough to keep up with the nutritional aspects of trying for (sort of?) "healthy."

Times like these get me thinking... and knowing. The number one major factor in America's obesity and poor health issues is... poverty. Have to work, no time or energy to cook. Cheap (I have to pay the damn BILLS!!!) equals big ol' package of SODIUM and empty calories. Life SUCKS and I'll probably get more FUCKED tomorrow than I was FUCKED today... in all the WRONG ways... think I'll drink a 12 pack and zone it all out. High stress equals no desire to add on the stress of a "diet." Etc., etFUCKINGc.

Americans are malnourished, despite their waist sizes.

...and I am no different than the rest of them.

In bologna I trust.

this crazy thing

What freaks me out is that it seems like the whole damn world is SICK. Yeah, I have MS, but not everyone else does! What the fuck is going on that everyone is sick all the time? Is it due to overpopulation? Crap in the air? Crap in the food? Crap in our DNA? All of the above?

Lately, I'm starting to envy those who have "passed on". Not because I think that they went to a place where they got all of their questions answered, but because at least they don't have to deal with all of the pre-carcass problems they had to deal with before. True, if there's a such thing as reincarnation, they'll have a whole new set of pre-carcass problems to deal with, but that's only an "if".

Is life really supposed to hurt this much? Does it really hurt this much for everyone else too?

take a look at me now

My eyes are fucked up, my legs are weak, I'm completely fatigued, my back hurts, I itch, my stomach hurts, I have a migraine brewing, bitch bitch bitch bitch bitch. Day after fucking day.

It's just that I'm so damn good at it (or so that's what they tell me.)

I've been really pushing myself these last few days, and I'm paying for it, but hey, if I didn't, whatever would I write about then?

stalling

I can't get to the point of opening a bank account here. I just can't bring myself to close the account which I originally opened in Philly about 15 years ago, or even to just start using an account which is based here. It's like admitting defeat... admitting that I will never return "home".

MS. MS is what did this to me. It took my home from me, my family from me, my friends from me... FUCK... it took ME from me!

Do I know who I am? Really? Who the fuck am I without this damn disease? Who the fuck am I WITH this damn disease? How I can "I" exist when I have a disease which keeps changing who "I" am so frequently and drastically?

Yeah, life alone does that... it's called "growth"... blah blah blah.

MS is "turbo-life".

Presenting Yesterday

In 1994, they told me that the answer to my problems was in my past... that if I looked hard enough, I'd find out what my problem was... what was making me feel like there was something wrong with my brain. I looked and looked, and combed through my whole life... every moment, every person I could get under my magnifying glass, I did. I analyzed my whole life, over and over again, until there was nothing left to analyze, and even then I started looking even further into PAST LIVES. Turns out, it was mostly the MS which was making me think, feel, and act the way I did.

Problem is, I don't know how to live my life looking forward. I don't know how to stop looking back. I keep trying, but from the time I was 16 (1985!!!), I was encouraged to look backward... to find the problems... to face the problems... to stay AWARE... to not cover things up or forget them... to talk about things... and talk and talk and talk...

I don't know how to function just living in the present!

Thanks a lot to the "Mental Health System". They gave me this damn disorder!

I remember you.

Somewhere out there, I have a sister. She is dealing with her lot in life in her own way, as I have had to deal with my life in my way.

We did the best we could with what life dumped on us. It's just about survival... about doing the best you can do to keep going... through all of it.

Today is a day of missing... missing those who could have been more present... yet who are not, through no real fault of their own.

I should feel lucky that in my life I have loved, and have been loved, enough to miss.

Maybe, when the pain stops, I will.

I'm not quite right at all, am I?

Day after day... they take some brain away... then turn my face around... to the far side of town... and tell me that it's real... then ask me how I feel...

Once upon a time, it all made sense. Then, it didn't. After that, it DID. DID. D.I.D. DID!

I'm trying, but I do not know that I am trying for the right things... I do not know that my motivations are "noble".

I just keep trying.

Cutter heads to South Park.

I don't know whether to try to post this, or just get my journal out and write there. I'm tired. I can't really think about anything without wanting to just crawl into bed.

Today was my last visit with "Neurodude". I have an appointment set up with, I'll just call her"Ms. Ellen", in September. Right before the appointment, I'm to have another MRI. SirThinksalot is all for that. He really is vain. Shoot, as long as it's not on my birthday, I'm good with it. There's just something about even the thought of being in that tube on my birthday that makes me want to cry myself to death.

I know that I've been in a sort of "denial" about my MS for a while. The other day, it started hitting home though. I have a disease... an incurable disease. It won't go away. It will continue to get worse. I am indeed "less than."

At today's appointment, both Neurodude and "Ken" (the blond Attending Physician) admitted that I actually knew what worked best for me, and that I knew when something was really going wrong with my brain. Neurodude restated that he did indeed think that my MS was of the "Progressive Relapsing" variety. Too, they set me up with an appointment with Ms. Ellen. With any luck, things will work out, and she will be my Neurologist until I'm through with this life thing.

I know Ms. Ellen well. We met back in March of 2005, when I was in the Hospital bonding with Chairy. It was a brief meeting. Ken left to go on vacation (or something), and she was the Attending who took over for him.

I know Ms. Ellen well. It is her name which is on my DNR order. I've seen her every day for more than two years.

At the moment

I feel too damn sick to even think about going to the damn doctor.

I'm tired of this shit.

that was another life

Eight years ago today, I made a choice. I had my cable tv disconnected, and decided to try out the whole Internet thing instead. ...and I've been online since then.

I don't mean that I started using the web to look shit up or to keep an e-mail account, I mean that from that day forward I WAS online... that I EXISTED online... "Offline" happened as often for me as "online" happened for most other people. This is probably still the case today, to some extent.

Did the Internet save my life? Did the Internet re-create my life? Did the Internet destroy my life?

I don't really know.

Did I really have a choice? Back in 1999, what would have happened had I opted to just keep seeing the Internet as a toy for complete LOSERS?

I can speculate, but there really just isn't a way of knowing for sure.

All I think that I do know for sure is that I'm still very much HERE... wherever "here" is.

hold onto 16 as long as you can

All is not well in the world of Cutter... more so than usual. I'm doing my damnedest to just keep going, but fuck if it ain't taking everything I've got to do so.

I'll see Neurodude in a few days, for the last time. After this, I have to find a new Neuroperson. I'm more than a little nervous about all of it. Things in general aren't going so well, like I said. I don't want this to be one more thing to add onto the list of "crap that is going crappy in my life".

...but life goes on. Yeah... long after the thrill of living is gone.

same shit, different carpet

Yes, May is over. No, I'm not doing well.

It's taking a lot more energy than it should for me to even write this much.

Life sucks, then you eat your dinner off of the floor because you couldn't manage not to drop the damn frozen Banquet meal you managed to nuke for yourself for dinner, and can't afford to waste food. 

heh heh. I guess that makes me an official "rug muncher".

May is DONE

I made it. It's over. Now, it's onward to November. I hope that my luck, or whatever it was that got me through this past month without too much damage, holds out.

May the hurricanes be as kind as hurricanes can be to us all.

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Thank you for reading.

- Cutter.