The Key
So, this month I learned that diuretics actually do help with some of my Chiari symptoms. So, you see, I told you, I was drinking to feel NORMAL.
I'd do just about anything to be able to stop having to use this cane... to see better... and, the pain? THE PAIN???!!! FUCK!!! It has even crossed my mind that I should beg to be allowed to risk one of the Chiari surgeries! More and more, I know that a lot of what ails me is Chiari related, as opposed to MS related. If my problems with balance and walking were MS related, they'd have "resolved" by now, just like a lot of the other MS symptoms did. From what I can tell, my MS symptoms come and go. There are a bazillion lesions, but the symptoms come and go as the lesions appear or resolve. That's why I can see at all. That's why I can feel my hands again.
I need to have these Chiari problems addressed. I need to have a more tolerable life. I need to be able to better deal with the HELL of MS.
Yeah, in this last month I learned that I was indeed born with a lot of this shit. Hopefully, in the next month, I'll learn that there's something I can do about it.
posted by: mattblack (reply)
post date: 02.14.08 (5:22 am)
I "know" several people online who've had surgery for Chiari (all of them also have MS), and whose lives improved significantly afterwards.
If you could get it okayed, and if you could handle being hospitalized plus recuperating at home, surgery might indeed be a positive thing for you.
I hope this is a possibility for you, if it's what you want.
posted by: Cutter (reply)
post date: 02.14.08 (5:40 am)
Reply to: mattblack
Oh my GOD!!! REALLY?!!!??? SHIT! Could you point me in their direction? Are they online somewhere I could read about them and their experiences? PLEASE?
I was concerned about the MS factor with surgery, among other things, but the MS, yes, very much a concern.
(You know how to reach me. ;))
posted by: mattblack (reply)
post date: 02.14.08 (1:22 pm)
Just sent you a tmail. :)
posted by: doeeyed (reply)
post date: 02.14.08 (2:04 pm)
I hope you can find there's something you can do about it too.
